Welcome to Tucker's Time!

"Home is where our story begins..."

We hope to raise awareness and funds to assist research that may help families
and children get an early diagnosis which will result in a better quality of life.

 

News...

Online registration is now open for Tucker's Time 5th Annual Charity Golf Tournament. Click here or the "Golf Tourney" link above.

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   Welcome to 2013!  I'm not really sure where the past 2 1/2 years have gone and don't really have much to show for them, other than weight gain... But, the one thing I know I must do is keep my promise to Tucker.  I will continue to spread awareness of Leigh's Disease / Mitochondrial Disease and fundraise in order to help find a cure. Hoping that other affected families do not have to experience our journey.  So, without further ado, Tucker's Time 5th Annual Charity Golf Tournament is going to be on Friday, June 21st, 2013. It will be held at the Carlisle Golf & Country Club and is the same location as last year.  Friendly, 'Save the date' and 'reminder' emails to sign up for the golf tournament to follow soon!


   I'm not sure how many of you are keeping up with the Mito community, but there is a lot of buzz - especially in the United States.  There have been children diagnosed with Mitochondrial Diseases that are related to celebrities, such as:  Jack Black (actor) and Chandra Wilson (Dr. Bailey, Grey's Anatomy).  These celebrities are getting involved and assisting in organizing fundraisers to help find treatments and a cure.  This is awesome news!  I would love to find an "Ambassador" with athletic-celebrity status for our annual golf tournament to raise awareness here, in Canada, at home in honour of Tucker. If anyone knows of such a person, please contact me.

 

Mitochondrial Disease Awareness Week

*** REMINDER ***  2013's Mito Awareness Week takes place the third 'full' week in September:  Sunday, September 16th - Saturday, September 23rd.

Helpful Links...

Mito Canada
238 Pettigrew Trail
Milton ON  L9T 5X6
www.mitocanada.org

United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
www.umdf.org

Neuromuscular Disease Centre
Neuromuscular Division
Box 8111 - Neurology
660 South Euclid Avenue
Saint Louis, MO 63110 USA
www.neuromuscular.wustl.edu

   2009 Family Photo

   2009 Family Photo


Photo and Video Gallery

Take a look at look at Tucker's pictures and you will see what we mean about that big, beautiful, infectious smile!

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My brave, beautiful boy at Tucker's Time 2nd Annual Charity Golf Tournament - Friday, July 23rd, 2010.  Unfortunately, it was the last one he was at (in person).

Tender Thoughts...

My Mom is a survivor, or so I've heard it said

But I can hear her crying when all others are in bed



I watch her lay awake at night and go to hold her hand

She doesn't know I'm with her to help her understand




But like the sands on the beach that never wash away

I watch over my surviving Mom who thinks of me each day



She wears a smile for others, a smile of disguise

But through heavens door, I see tears from her eyes



My Mom tries to cope with my death & to keep my memory alive

But anyone who knows her, knows it's her way to survive



As I watch over my surviving Mom through Heavens open door

I try to tell her that angels protect me forever more



I know that doesn't help her or ease the burden she bears

So if you get a chance go visit her and show her how much you care



For no matter what she says....no matter what she feels

My surviving Mom has a broken heart that time wont ever heal

- Anonymous